Participation

Who can participate?

All people with a neuromuscular disease who are being treated in Switzerland can participate. Currently, the following diseases are covered:

• • • Spinal Muscular Atrophy (SMA)
    • Duchenne and Becker muscular dystrophy (DMD and BMD)
    • LAMA2-related congenital muscular dystrophy (also called Merosin-negative congenital muscular dystrophy (MDC1A)
    • Collagen VI-related myopathy (COL-6)

How can you or your child participate?

Ask your specialist to enroll you or your child. If this is not possible, please contact us by ">email. Participation in the Swiss-Reg-NMD is voluntary. By participating, you or your child do not commit to any obligations. We only document what is routinely examined or prescribed in the hospital or doctor’s office. You can withdraw your participation at any time without justification (e.g., by e-mail).