Still have questions?
In our study information for parents and affected children and adults, you will find comprehensive information about the registry, as well as the consent form for enrollment in the registry. You can discuss this with your doctor.
Information for parents
Information for adults
Information for children, adolescents and guardians is available in French, Italian and German on our homepage in the respective languages.
Where can you or your child find support?
Switzerland has a network of specialists for the care of people with neuromuscular disorders. Medical care and advice is available, for example, at the neuromuscular centres in Basel, Bern, St. Gallen, Zurich, Lausanne, Geneva and Ticino.
Patient organizations also offer helpful support or advice for many questions:
ASRIMM – Association Suisse Romande Intervenant contre les Maladies neuromusculaires
MGR – Associazione malattie genetiche rare della svizzera italiana
ssem/fsrmm – schweizerische stiftung für die erforschung der muskelkrankheiten
ProRaris – Allianz Seltener Krankheiten, Schweiz
Konferenz der Vereinigung von Eltern behinderter Kinder (KVEB)